Hola. Gracias por estar con nosotros durante estos tiempos difíciles y darnos vuestro apoyo. Sabemos que a muchos os cuesta el inglés y siempre, desde el comienzo, ha sido nuestra intención incluir en el blog links para visionarlo tanto en castellano como en catalán. Solo deciros que estamos en ello y esperamos que empiece a andar como muy tarde a finales de la semana que viene.
De nuevo, gracias por estar con nosotros,
Un abrazo fuerte,
Robin y Dani
Our best wishes for Alejandro,
ReplyDeleteOur son is a neuroblastoma IV survivor. First diagnosis in 1996 at 3 y (surgery, chemo); relapse at 10 y (surgery, chemo, bone marrow trasplant)... now is 18 y and he has a healthy life.
Jordi (from Barcelona)
Dear Jordi,
ReplyDeleteThank you so much. It is so wonderful to hear of long-term survivors. And here in Barcelona. It gives us hope. Again, thank you for sharing.
Robin, maybe could be interesting for you to be registered in the neuroblastoma medical list. Perhaps you know it, is a mail list composed by parents of nb children. One of the topics is the dicussion about antibodies terapies.
ReplyDeletestserv.acor.org/SCRIPTS/WA-ACOR.EXE?SUBED1=N-BLASTOMA&A=1
All the best
Jordi
Dear Jordi,
ReplyDeleteThank you. I discovered this list a while back, when Ale was NED. It is a wonderful place. Between the exchange of information and just knowing that there are people out there that know what you're talking about and going through helps to make this journey a bit less lonely. I actually plan to post soon to see if anyone is currently in Germany for the antibody therapy for relapse...
Thank you,
Robin