Wednesday, November 9, 2011

Hello, all.
I just wanted to touch base quickly.  When things get back on track I'll write more about all that's been happening.  I've been meaning to write for days and just haven't been able to find the time.  We're home from the hospital after only a week that somehow seemed like a month.  Ale is recovering amazingly well for having undergone a third surgery to the same area.  Although he has discomfort in his left leg and the scar that runs from above his belly-button to his pubic bone is still healing, today he actually ran a little bit on our way to the supermarket.  This time he was in surgery for six hours.  They think they were able to completely remove the tumor- we should know by next week.   We left the hospital yesterday after
having a last minute MRI (there was a cancellation and they called up to the onc ward and our oncologist sent us running down) so between that and the urine markers they tested for between Monday and Tuesday, that's two post-op tests down and only one more to go.  Another last minute cancellation has allowed us to be scheduled for the MIBG scan first thing tomorrow morning.  This morning was spent back at the hospital getting pre-scan iodine drops and the injection of contrast.  To say the least, our heads are spinning.  We should have all test results, including pathology on the tumor, by next Tuesday at our next appointment, when we will see not only the oncologist, but both surgeons who operated on Ale as well.   
Whew!  It always takes a few days to get back into the swing of things at home and since we're still running back and forth to the hospital, it's taking a little bit longer.  So, I promise, as soon as I can, I'll get everything down in writing.  And, as always, thanks for listenting.

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